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Beth
Bennett;
PLWP Secretary
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Hello! Some
of you may know me already as 'Bennett' from the MGH forums, but my full
name is Beth Bennett. I was born and raised right here in beautiful
upstate New York, have been married to my high school sweetheart for
nearly twenty three years now and we share two great sons now 21 and
almost 18! Up until the year 1998 my life was going just where I wanted
it to and I was really beginning to believe that I was finally on my way
as a small business owner and self-employed professional
photographer. Over the years I had my share of health issues, much like
anyone my age but then something new appeared, a tremor, not a good thing
for a photographer! By January 1999 I had sought out medical attention
for the ever increasing tremor in my head/neck/jaw area and i had also
conducted my own research through the internet, which subsequently led me
to the forums at MGH.
As time went on, and symptoms and meds increased despite my lack of a firm
diagnosis of Parkinson's Disease, I have grown to become an active member
of PLWP in an effort to not only remain positive about my own situation
and whatever it's eventual outcome will bring, but to help others in
whatever way I possibly can to live well with Parkinson's, MSA, PSP or any
neurological disorder! I have found PLWP to be the best vehicle for me to
do just that, and I look forward to becoming increasingly involved in
working together with all of you in support of the goals PLWP seeks to
achieve. It has therefore been my extreme honor to accept the position
of Secretary for PLWP, albeit under sad circumstances. Tim Foley, you
have set a fine course for me to follow and I pray that I'm able to day by
day make you all proud to have me as your fellow PLWP member!
Greg Wasson - PLWP Advocacy Director
Professional and Educational
· Born Dec. 18, 1951, in Oakland CA
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· Raised in North Bay town of Vallejo, California, where
father was employed at Mare Island Naval Shipyard
· Graduated Vallejo High School in 1970
· Graduated from University of California at Berkeley, cum laude, 1974
majoring in U.S. history
· Tax Auditor and Taxpayer Service Representative with IRS - 1974 to 1980
· Graduated University of California Hastings College of the Law 1983
(member: Order of the Coif, Thurston Society)
· 1981 to 1984: Law Clerk and Attorney for Lynch, Loofbourow, Helminstine,
Gilardi and Grummer (insurance defense litigation)
· 1984 to 1988: Corporate Counsel to Industrial Indemnity Co.
· 1988 to 2000: Senior Attorney Editor -- Westgroup Law Publishers;
retired on disability Jan 2000
Parkinson’s Disease and Advocacy History
· 1995 - diagnosed with Parkinson's Disease
· January 2000 - left employment due to disability caused by Parkinson's
disease
· 1998 - organized local Parkinson’s support group in Oakland CA - still
attends
· Active member of Massachusetts General Hospital Neurological Web Forum (Braintalk
Communities) since 1998
· Began volunteer work with Parkinson's Action Network in 1999
· Participant in clinical studies at Parkinson’s Institute, Palo Alto, and
UCSF, San Francisco
· Spring 2000 - Began consulting with Michael J. Fox concerning Foundation
Website; contributed several essays to "Living With Parkinson’s" section.
Occasional consultant to MJFF concerning website content and structure.
Recently co-wrote FAQ section for Newly Diagnosed and Caregivers for new
MJF website with partner Ann Campbell.
· Attended 2000 PAN/MJFF Public Policy Forum
· Fall 2000 - Joined People Living With Parkinson’s, Inc - Currently
Leader of Advocacy Team
· February 2001 - Authored and promoted online Stem Cell Petition to
President Bush which was personally delivered in hard copy with comments
by signatories to Mary K. Mantho, Chief Policy advisor to Health and Human
Services Secretary Tommy Thompson. Petition gained over 20,000 signatures.
· April 2001 - Keynote Speaker (with Ann Campbell) at annual symposium
sponsored by Hawaii Parkinson’s Association.
· 2001-2002 - Worked with PAN to develop e-based Grassroots Advocacy
Network. Currently State Coordinator for No. California of Grassroots
Advocacy Network
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