Get involved in advocacy in your part of
the world. It's time to take an interest and educate ourselves
about Parkinson's issues. You'll find a collection of websites that can
keep you informed about Parkinson's issues at the bottom of this page.
These links will go on the PLWP
website as well as here.
Peg Willock, Virtuality Co-Editor, will be keeping us informed on Parkinson's research issues.
would you like to raise awareness about Parkinson’s disease, bring in
funding for PLWP and have fun in the process? Well, you can do
all three by hosting a golf outing. Now is the time to start planning and
organizing for a late summer or fall event. Yes there is work involved,
lots of it. The satisfaction you receive when you present the check to
PLWP or when someone asks what they can do to help, is well worth the work
you put into it. Knowing that you are helping others gives you a sense of
purpose, something that many of us find missing in our lives. If you’re
interested but don’t have a clue where to begin, we have put together a
“how to” guideline for you to follow. Here’s
the link to it.
In the next few days the PAN California Grassroots Advocacy Network will
be issuing a bulletin containing several exciting scientific developments
which promise to impact directly upon the treatment of Parkinson's.
There has never been more exciting time, both in science and in the area
patient advocacy for Parkinson's. If this email has been forwarded to you,
and you are interested in becoming a part of this effort, or you would
simply like to know what is happening on the cutting edges concerning
Parkinson's Disease, please send an mail address to me at
and indicate that you like to be included in our mailing list. Will be
happy to send a blind copy to you, keeping your e-mail private as PAN
uniforms the public.
Greg Wasson -- State Coordinator -- PAN California Grassroots Advocacy
phone and fax -- 707 -- 795 -- 7017.
I don't know if you would like to use this, but it is the letter I
e-mailed to 78 of my friends and relatives asking for their support by
contacting their Senators concerning the Brownback bill. It can easily
be used by anyone as a cover letter directing them to the web site
that helps them contact their Senators.
14 April 2002
Dear Family and Friends,
Please take a few moments to read this letter and help me and other
Americans who suffer from chronic illnesses.
A bill has been introduced in the U.S. Senate that would send scientists
AND PATIENTS LIKE ME to prison for 10 years for simply researching somatic
cell nuclear transfer (SCNT), or receiving treatment "derived" from that
research. The bill has already passed the House. It will be taken up in
the Senate before the Memorial Day recess. Memorial Day this year is May
27th. Less than six weeks from now.
The nation’s leading scientists, including two prestigious committees of
the National Academy of Sciences and the American Association of the
Advancement of Science, agree that cloning to reproduce humans should be
illegal, but that SCNT technology should be permitted.
Right now, the Senate is split 40 to 40 on the Brownback bill. Twenty
Senators undecided. President Bush has declared war on stem cell
therapeutic research and vows to sign this bill if passed. Senator
Brownback unveiled a petition containing 400,000 signatures of people who
are saying SEND THESE
PATIENTS - (ME) - AND SCIENTISTS TO PRISON FOR TEN YEARS if they conduct
research or receive a treatment "derived" from stem cell therapeutic
Senator Brownback's bill is the biggest threat that has ever faced the
chronically ill, people like me who have Parkinson's, Alzheimer's and
other diseases that are on the verge of being cured through stem cell
research. Please go to this web site, no matter how you feel about the
subject at this moment, and read the information to learn more about this
critically important research:
It's so very important that this
legislation is defeated. The web site makes it as easy as pie to contact
your Senators, and provides excellent but brief background about the
nature of SCNT.
I cannot emphasize enough the importance of what is at stake here. PLEASE,
visit the web site now and again when this bill is taken up for
consideration in committee and on the Senate floor. Please let me know that you have contacted your Senators in opposition to it.
( emails addressed to Em will be forwarded to her)
"MAKING NOISE - SILENTLY!"
The Silent Majority Can Now Be Seen!
by Peg Willock
Joke: How do you get a Congressman's attention?
Answer: Tell him your family of 6 kids and 18 grandkids won't be
voting this year!
Money talks - but numbers get attention!! With all of this new
research about Parkinson's Disease, what can one person do? Write a
letter, call your congressman, or better yet - BE SEEN! Now this is
possible more than ever with your opportunity to attend Senate Hearings on
May 22! (the day following the PAN - Parkinson's Action Network- Forum).
It's time for those "grassroots" out there who feel they don't have a
voice to "make a lot of noise". . . silently! Huh? Scratching your head?
Visit "your" site:
(Click on "Need - Get Involved" -
best viewed with Internet Explorer) Sign the "Declaration" (if you haven't
already) and the "I Used to Be . . ." rosters (EVERYONE who has & knows
someone with Parkinson's!)
ATTN: Those diagnosed with PD or who
lost the income of a family member with PD! Each of us will cost
approximately $25,000 in cost of care!
**(We'll deliver the names & information to Washingson, D.C. to the
proper legislators) **
Be in Washington, D.C. on the day
of Senate Hearings Wednesday, May 22, 2002. Proudly display & wear
your "voice" pin "I Used to Be a . . ."
For example, my button will say, "I Used to Be a School Principal" and
there will be a place on the site to tell my salary lost to PD disability.
What a great way to silently make your voice heard!!
Many thanks to Charlie Black, Paula Wittekind, Peg Willocks, Linda Herman
& Greg Wasson & Anne Campbell for working on this!!
These are just a
few of the links that are on the internet for sites with information about
issues that are of concern to people with Parkinson's. Send us your best
links and we'll put them on the PLWP website for others to discover. Send